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Cystic Fibrosis Trust

UKCFC 2018: day two

Day two is designed for all those with either a personal or professional interest in cystic fibrosis (CF).

Tuesday 11 September 2018

Day two of the conference will be streamed live online.

9.00 Conference registration
9.30 Welcome to day two

Richard Hunt CBE, Chair of Trustees, Cystic Fibrosis Trust

Session one

9.40 Our three-year strategy

Chair: David Ramsden, Chief Executive of the Cystic Fibrosis Trust

  • Presentation of how the Cystic Fibrosis Trust's three-year strategy is responding to the needs and demands of the CF community.

Session two

10.10 Access to medicines

Chair: Professor Jane Davies, Imperial College London

Pathways to new medicines

  • Explore and explain the current drugs pipeline and the upcoming challenges
10.40 The value of new medicines

Panel discussion covering:

  • the process of appraisal
  • approval and funding of new and precision medicines
  • the impact this has on burden of care and existing treatments
  • the role the Trust and the CF community can play in this
  • the value of new and precision medicines to people with CF and the clinical community
11.10 Break: refreshments and networking

Session three

11.25 The future of care

Presentation by Dr Keith Brownlee, Director of Policy, Programmes & Support, Cystic Fibrosis Trust, followed by panel discussion.

Session four

12.15 Cystic fibrosis and the 'real world'

Interactive presentation/live podcast by Will Marler covering different experiences of day-to-day life with CF and the range of information and support issues faced by people with cystic fibrosis.

Closing remarks 
13.00 Lunch and networking

Session five

14.30 Afternoon workshops

Multidisciplinary interactive sessions to help in the fight against cystic fibrosis

A. CF and physical therapy/exercise

B. Youth work in CF

C. Diet and nutrition

D. Clinical Trials Co-ordinator Workshop

E. UK Cystic Fibrosis Medical Association

Annual General Meeting – Closed Session

16.00 Close of conference

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.