Through CF LIVE, expert panels will share the latest information and updates from the world of cystic fibrosis. We’ll cover a wide range of subjects and you’ll have the opportunity to be part of the discussion by submitting questions.
Next event: ‘'Involvement: the future of cystic fibrosis - how your experience can shape tomorrow’
Wednesday 24 February 2021, 7pm
Your experience of living with CF on a day by day basis, provides valuable insight to the Trust and beyond. Hear how people with CF, parents, partners and grandparents are already sharing their knowledge to drive forward CF care, research, new treatments, recognition and support. Find out how you could join in with future involvement activities.
Register now
Save the date for future events*
- There are currently no further scheduled events. Please check back here soon for details.
*We will try to stick to the dates advertised; however, on occasion some dates may change, through reasons beyond our control.
For more information, or if there’s a theme that you’d like us to cover at a future CF LIVE, email: conference@cysticfibrosis.org.uk
Watch recordings of previous events
20 January 2021 – 'Physiotherapy and exercise: support, advice and tips on how to stay physically active' – Our expert panel discussed how physiotherapy care and our exercise habits have changed due to COVID, and shared tips to help you stay physically active, and sharing tips and on getting motivated through the winter months. Watch the recording.
4 November 2020 – 'Clinical trials: how you can shape the future of CF medicine' – Dr Retsch-Bogart from the CF Foundation (USA) was joined by CF doctors and people with CF who have participated in clinical trials to talk about the type of emerging therapies we can expect to see progressing through CF clinical trials in the near future. Watch the recording.
HIT-CF was also mentioned during this event. You can find out more about this here.
7 October 2020 – 'How we're working to beat antimicrobial resistance (AMR) in cystic fibrosis' – Our panel of CF researchers discussed what's involved in tackling drug-resistant CF infections and why they're needed. Watch the recording.
23 September 2020 - 'Work and money – know your rights' – Our expert panel discussed the support available to help adults with CF understand their employment rights, maximise their income and navigate the benefits system. Watch the recording.
19 August 2020 – 'Returning and settling back into education – Our expert panel answered some of your questions about going back to school and discussed the support available. Watch the recording.
5 August 2020 – ‘How your data makes a difference’ – Our Registry team spoke about the importance of your data and how it helps us improve the lives of people with cystic fibrosis. Watch the recording.
8 July 2020 – Kaftrio Community Event – David Ramsden, our Chief Executive, and Dr Keith Brownlee, Director of Policy, Programmes and Support, chaired a live virtual community event about the latest updates on Kaftrio. Watch the recording.