Through CF LIVE, expert panels will share the latest information and updates from the world of cystic fibrosis. We’ll cover a wide range of subjects and you’ll have the opportunity to be part of the discussion by submitting questions.
Next event: ‘Christmas party!’
Friday 4 December 2020, 6pm
Join us on 4 December as we end our 2020 series of CF LIVE events with a special festive Christmas party. The party is free to attend and we hope as many of you as possible are able to join us. Come dressed in your finest or funniest Christmas outfit for music, singing, Christmas activities and entertainment....and maybe even a visit from Father Christmas himself!
Register now
What to expect at the party
Talent feature
Can you sing, dance, juggle, do magic, or have another special talent? If so, we would love you to take part in our talent feature! Anyone can enter, but if you are under 18 you will need to have a guardian's consent.
To enter, please email your details to events@cysticfibrosis.org.uk along with a short video showcasing your talent. The deadline for entries is Friday 27 November at 4:30pm. Our CF LIVE Christmas Party Panel will make the final decision on who will be joining us on Zoom at the party.
Letters to Santa
Santa is going to be making a very special appearance at our Christmas Party, and he would love to hear from you! Send him a letter by emailing Santa@cysticfibrosis.org.uk. Although he may not be able to read every letter, he promises to read a few live at the party.
Our elves are on standby to pass your letters onto Santa. Make sure your letter reaches the elves by Monday 30 November.
'How-to' Christmas activities
We will be having some live demonstrations at the party to help you prepare for Christmas, including how to make a marshmallow snowman and some snowman poop! Download your guides to find out what ingredients* you'll need:
Marshmallow snowman (PDF 439KB)
Snowman poop (PDF 669KB)
Snowman poop labels (PDF 2.93MB)
We will also be making reindeer food to sprinkle in your garden on Christmas Eve to help Rudolph and his friends find their way to your house! Follow the instructions in our festive activity booklet and download the reindeer food labels.
*These recipes contain some allergen ingredients. Please check before making.
A Christmas boogie
Fancy getting in a little dance at the party? Our marvellous choreographer Katie has prepared a routine that you can practice for the night.
Save the date for future events*
There are currently no more future events scheduled for 2020.
* We will try to stick to the dates advertised; however, on occasion some dates may change, through reasons beyond our control.
For more information, or if there’s a theme that you’d like us to cover at a future CF LIVE, email: conference@cysticfibrosis.org.uk
Watch recordings of previous events
4 November 2020 – 'Clinical trials: how you can shape the future of CF medicine' – Dr Retsch-Bogart from the CF Foundation (USA) was joined by CF doctors and people with CF who have participated in clinical trials to talk about the type of emerging therapies we can expect to see progressing through CF clinical trials in the near future. Watch the recording.
HIT-CF was also mentioned during this event. You can find out more about this here.
7 October 2020 – 'How we're working to beat antimicrobial resistance (AMR) in cystic fibrosis' – Our panel of CF researchers discussed what's involved in tackling drug-resistant CF infections and why they're needed. Watch the recording.
23 September 2020 – 'Work and money – know your rights' – Our panel discussed the support available to help adults with CF understand their employment rights, maximise their income and navigate the benefits system. Watch the recording.
19 August 2020 – 'Returning and settling back into education – Our expert panel answered some of your questions about going back to school and discussed the support available. Watch the recording.
5 August 2020 – ‘How your data makes a difference’ – Our Registry team spoke about the importance of your data and how it helps us improve the lives of people with cystic fibrosis. Watch the recording.
8 July 2020 – Kaftrio Community Event – David Ramsden, our Chief Executive, and Dr Keith Brownlee, Director of Policy, Programmes and Support, chaired a live virtual community event about the latest updates on Kaftrio. Watch the recording.